Thursday, August 6, 2009

Making Progress

So, I just wanted to write about 2 of Chloe's latest accomplishments. In the past few days she has started patting people on the back when she's being held up on the shoulder if the holder is patting her on the back. It is sooooo adorable! She also moved FORWARD yesterday with a commando-type crawl. It was VERY exciting. She's so motivated to move!!!!! :) It's so fun watching her learn new things.

We're struggling to get the CPAP on every night. It's hard being out of our routine and being more tired then usual because we're vacationing in Maine and staying up later with family, etc. It's stressing me out a little. She's not being tolerant either. We saw our pulmonologist and he was urging us to follow through with the CPAP and was going to write another letter to the insurance company to attempt to get overnight nursing care again. I called to confirm we had reached our max and there was no other benefit we could utilize and they said "well, you could put her in a skilled nursing facility". SERIOUSLY??? They'd rather pay more to have her in a skilled nursing facility rather than have someone come in and help us just because we're maxed on one benefit. I just don't get how they think. . . okay, I DO get how they think. They assume we won't use the skilled nursing facility! We need the damn help!!!!! ARGH.

It's fun having Chloe back in Maine at her birth place. The family is eating her up. One of my sisters who was holding her and hadn't seen her since December was commenting to me about how special she is. She said "you write about it all the time, but now I can really see it." :D It warms my heart to see her touching people the way she does. My niece Gretchen can't seem to get enough of her either. There's certainly no shortage of attention for her here!!!!

1 comment:

  1. don't even get me started on insurance girl. It amazes me the stupid things they do. I would like to hope this new health care system they are working on will be helpfull, but I'm not keeping my fingers crossed. The middle class seems to always be the ones footing the bill.