Monday, November 30, 2009

Getting Better

Chloe's cold / ear infection has gotten much MUCH better. She still has a nasty morning cough, but her eyes and nose have cleared up and she doesn't seem to be so bothered by her ear. Phew! ;)

Therapy is going well. She has started doing some "floor transitions" (going from belly to all fours to sitting) with her braces on. That's a HUGE step. She's only been using her braces for brief periods of standing , but now she can start to wear them more often and eventually when she can pull herself up, she'll wear them most of the day so she can walk. I know, slow down, she's got a WAYS to go before walking, but obviously that's the ultimate goal.

Her g-tube is leaking a lot lately and I think it might be time for a bigger size. We go to her pulmonologist tomorrow for a routine appt and I'm hoping surgery can squeeze her in too to look at her g-tube. A leaky g-tube is no fun. ewwww! I'm also scheduled to talk to a nutritionist on Thursday so we can make a plan to maybe, hopefully, someday start to wean her from the g-tube. I'm looking forward to working with her.

Well, Stacey and I are off to a Rangers hockey game tonight with the two older kids. We couldn't be MORE excited. Stacey (my hubby) said trying to sleep last night was like that Disney commercial - "I'm too excited to sleep!". It's Rangers/Penguins and Stacey is a huge Rangers fan and Xander is a huge Penguins fan. I'm a Rangers fan too, but not quite as big as Stacey. No matter what it's a night out with the kids so I'm thoroughly excited. :)

Friday, November 27, 2009

Thank you

Well, it seems as though a blog of thanks is appropriate at this time. So here goes. my top 10 things I'm thankful for, in NO particular order. . .

I am thankful for. . .
*my blog friends who support me no matter what is going on
*my family (that is really about 20 thanks in and of itself, but for breivity sake, I thought I'd just sum it up into one)
*Chloe's health as of late
*my friends who still love me even though I've been an anti-social depressive lately
*all the "things" in my life that I am lucky enough to have
*despite our financial hardships still being able to put food on the table
*having a child with Down syndrome - I'm not thankful that Chloe has Down syndrome, but that I got to have a child with Down syndrome, because Chloe is very special, in part because of that extra chromosome. Does that make sense?
*the sun and beautiful days
*having the most perfect husband in the world for me. He makes me feel special and important and supports me in a way no one else could.
*all the special relationships in my life, in particular the relationships I have with my mother and my kids (for now anyway, I know in the next few years they will probably hate me LOL)

okay, that's 10. I could go on, but who wants to read about all the things I can think of to be thankful for! haa haa. I bet you if I sat down and put my mind to it, I'd come up with 100's. Ranging from life to the beach to snow to flowers to advances in medical technology. Maybe it would be a good activity for me to do. I could use some good positive thinking for myself! I invite you to join me and see how many you can come up with. I plan to print and post my in my bathroom to start my day with.

Love to all and Happy Thanksgiving!

Wednesday, November 25, 2009

Chloe update

Looks like Chloe's got a good ol' ear infection. Lungs sound good. And once again she's handling this cold like a champ. None of the scary stuff we'd gotten so used to. :) Thank goodness.

Chloe's Cold

Well, early this morning (3am) Chloe spiked a fever of 104.5. She was breathing very rapidly, but Motrin brought her fever down and that seemed to help her whole system. she's got a cough, but is still in pretty good spirits. We're off to the pedi at 2:45 to have her checked out. I don't expect anything dramatic, aside from it's an upper respiratory infection. . . we'll see and I'll keep you posted. And hopefully we'll all get some sleep tonight!!!!

Monday, November 23, 2009

Bad cold

Well, now she's got a cold with stuff coming out of everywhere. She's remaining in pretty good spirits though and so far so good with breathing! Phew.

As for the shiner below, I guess I may have purposefully omitted the "how" because I banged her head on my knee when I was holding her and went to sit down!!! Talk about feeling terrible! Now that she's mobile she's got all kinds of bumps and bruises!

Saturday, November 21, 2009

Our Little Rock Stars

(you may need to pause the music at the bottom of the page before viewing, if music plays automatically when you're on the blog)

Chloe rocks out to some Nickelback. Check on the air guitar in the middle ;)

Sadie, our now 4-year-old, sings us an original demonstrating her 3-year-old angst.

Friday, November 6, 2009

Keeping Busy!

This is how Chloe is keeping busy these days! Look out, we're in for it!

Thursday, November 5, 2009

Wednesday, November 4, 2009

A Quick Fix

Well, turns out that soy milk only has 100 calories per 8 ounces whereas the formula she was on before switching at the magic age 1 was 100 calories per 5 ounces. BIG DIFFERENCE, right? You bet! Soooo, we have her on toddler soy formula and after only a week she's already putting the weight back on. AND she's got more energy then she knows what to do with. She's scootching all over the place and doesn't want to sleep because she's too busy moving! Glad that was a nice quick easy fix!