Tuesday, February 28, 2012

Chloe Being Chloe

Chloe likes to keep me on my toes. She likes to make me worry. Okay, maybe she doesn’t actually LIKE it, but that’s what she does anyway. So what’s she been up to as of late? First, let’s start with her “cold foot”. She continues to have an occasional cold foot, leaving the docs stumped because it’s not consistently cold and she doesn’t seem to have any pain. But the cardiologist (heart doc) moved up her echocardiogram (heart ultrasound) from April 30th to March 5th so we can rule out cardiac issues. We’re all feeling fairly confident that it’s not a heart issue, but that little nag of worry still hides in MY heart.

The other drama came with a bout of the stomach bug last week. She got it Monday night and each time she vomited (which was about every 15 minutes for 2 hours) her tongue turned a purplish-blue color. It was startling enough that I called the pedi. He didn’t have an answer as to why that was happening because she didn’t appear in distress and the color around her mouth was fine. Probably just Chloe being Chloe. He ordered some Zofran to stop the vomiting and she eventually calmed down. Over the next few days she continued to have these very purplish-blue feet and hands and just generally didn’t look good. Another call to the pedi and it was determined that she wasn’t regulating her temperature due to the virus. Nothing to be alarmed about. Just Chloe being Chloe.

Everyone keeps telling me that her plumbing (aka her heart) is fixed, but I can’t help but always wonder if there isn’t something ELSE going on. I can’t help but remember when she was 2 weeks old and went into severe congestive heart failure for unexplained reasons. “It’s NOT related to her AVSD”, they told me. “We don’t know what it is”. I knew those words would one day come back to haunt my memories. Do I think this is that? Absolutely NOT. She is NOT in any distress. NO breathing issues of any kind (aside from a blue tongue when vomiting). But I guess I’m just predisposed to worry about her now. Despite all my worrying, it’s more likely than not, that it’s just Chloe being Chloe, but I’ll be relieved to hear all looks good at her annual cardio appointment next Monday! Keep her in your thoughts and prayers, if you don’t mind, for some resolution. As always it’s greatly appreciated.

As for the rest of the crew, a quick update: Sadie had the stomach bug last week too, but is recovered and back to her old self. She’s finally decided on an “activity” all her own – piano lessons. I’ll be looking into that soon. Xander played in the Squirt Norris Division State Hockey Tournament this past weekend and his team went into the championship game on Sunday undefeated. They lost 5-4 in a well-played nail-biter. Turns out Xander was playing with the stomach bug and promptly got off the ice and vomited all over! YIKES! He’s been in bed recovering since then. Oh and a trip to the dentist showed he’s grinding his teeth and is potentially a cause of his headaches. Stacey finally had a sleep study and found he has sleep apnea. Hopefully once he gets on the CPAP he’ll start feeling better. As for me, I got the stomach bug last week too and took some time to recover, but am now feeling much better. I have my sleep consult tomorrow morning. Hopefully I’ll get some answers. :) I think that about covers it! Until next time. . .

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