Say What?

Well, Chloe had a hearing test today. It was a follow-up to a test she had several months back that showed she had some mild hearing loss likely related to fluid. The repeat test today was scheduled so that it would be during the time of year least likely to have fluid. She has been free of colds and runny noses and hasn't shown signs of any ear infections, however she did still test with a mild loss. We are scheduled for an ENT appointment the first week in October (the appointments were originally scheduled back-to-back at the same place so we could get immediate feedback, but they lost an audiologist and had to move our appointments around, so now we have to wait. Shucks.) So the big question is whether or not they'll recommend tubes. I wasn't surprised because of the previous test, but it's been a busy few weeks. Her eye is turning in, her foot is turning in and now hearing loss. All pretty minor, but things we need to address. Let's hope this is the worst of it. We can deal with this stuff!

And for some good news, Sadie had a hearing test Tuesday and passed with flying colors. YAY Sadie!

ENT report

Chloe was a trooper at her ENT (Ear, Nose and Throat) appt today. Her OT and I have both noticed some hearing loss (she doesn't turn her head to sounds that are out of her sight as consistently as she used to) so that was the focus of our visit. The doc cleaned out the wax (she didn't love that, as you can imagine!), and also noticed some fluid in one ear. Since she is getting over the final stages of her croup/cold he wants to give her a month to see if the fluid will resolve. Until then I will keep an eye on her to see if her hearing seems to improve any, but we are scheduled now mid-July for a basic hearing test at Yale. At that point we'll talk with the doc again and then make a decision what steps to take next, if any. If she's still showing hearing loss we will potentially go next for a sedated hearing test at which point he could actually put tubes in right then if needed. I read somewhere online that 60-80% of people with Ds have some degree of hearing loss. He said he doesn't want us to worry about it at this point. She's her usual happy self, so as long as she's happy, I'm happy.

Wednesday is my Endocrinology appt so hopefully we'll get some answers for ME! And Friday is Chloe's eye doc appt. Her nystagmus seems much better so I expect Friday will be uneventful. I'd like to only have to worry about losing one sense at a time!!!

Boy, our little ones sure have the cards stacked against them, don't they!