Below is a pic of her sitting in her stroller in the ED. The resident that treated her was an intern when Chloe was first admitted 2 years ago. She was THRILLED to see Chloe doing so well. :)
is the story of one family's journey through life with a very special child with Down syndrome and a complicated medical history and how we have learned to DANCE through the tulips.
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Friday, September 17, 2010
Keeping Me on My Toes!
I went to change Chloe this morning and when I lifted up her PJ shirt I found her G-Tube deflated, just lying on her belly (ON, not IN!). Since I didn't know how long it had been out I called Pedi Surgery to see if I needed to come in or not and indeed, they wanted me to make the trek to the emergency department so a surgeon could look at it. Well, after driving all the way there no one from surgery even came to look at it because since she hadn't used it for 2 1/2 months they decided to leave it out!!!! We will see her surgeon on Monday. The plan is to let it close on its own. If it doesn't close after a week, then they will schedule a procedure to close it up. Too bad we couldn't determine that over the phone, but at least it's all good! It's got a bandage on it for the "oozing" of stomach contents which I need to stay on top of and change frequently, but I can handle that. What a big girl! No more g-tube (okay, can I confess I'm a little nervous to have lost the safety net!!! I know, she'll do great, and she's ready, but there was something comforting about keeping it in for 6 months after she stopped using it - that was the original plan). I guess when Chloe decides she's ready, that's it!
Below is a pic of her sitting in her stroller in the ED. The resident that treated her was an intern when Chloe was first admitted 2 years ago. She was THRILLED to see Chloe doing so well. :)
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Below is a pic of her sitting in her stroller in the ED. The resident that treated her was an intern when Chloe was first admitted 2 years ago. She was THRILLED to see Chloe doing so well. :)
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Funny story, but you are so right Amy. Chloe knows she doesn't need that uncomfortable messy thing anymore. Great job guys!!
ReplyDeleteI would have freaked!! But, the good thing is that Chloe is on her own now...so, this is isn't so bad. WOW, what a morning! Poor Momma...
ReplyDelete{{HUGS}}