Monday, November 30, 2009

Getting Better

Chloe's cold / ear infection has gotten much MUCH better. She still has a nasty morning cough, but her eyes and nose have cleared up and she doesn't seem to be so bothered by her ear. Phew! ;)

Therapy is going well. She has started doing some "floor transitions" (going from belly to all fours to sitting) with her braces on. That's a HUGE step. She's only been using her braces for brief periods of standing , but now she can start to wear them more often and eventually when she can pull herself up, she'll wear them most of the day so she can walk. I know, slow down, she's got a WAYS to go before walking, but obviously that's the ultimate goal.

Her g-tube is leaking a lot lately and I think it might be time for a bigger size. We go to her pulmonologist tomorrow for a routine appt and I'm hoping surgery can squeeze her in too to look at her g-tube. A leaky g-tube is no fun. ewwww! I'm also scheduled to talk to a nutritionist on Thursday so we can make a plan to maybe, hopefully, someday start to wean her from the g-tube. I'm looking forward to working with her.

Well, Stacey and I are off to a Rangers hockey game tonight with the two older kids. We couldn't be MORE excited. Stacey (my hubby) said trying to sleep last night was like that Disney commercial - "I'm too excited to sleep!". It's Rangers/Penguins and Stacey is a huge Rangers fan and Xander is a huge Penguins fan. I'm a Rangers fan too, but not quite as big as Stacey. No matter what it's a night out with the kids so I'm thoroughly excited. :)

2 comments:

  1. I am desperately trying once again to catch up on everyone's blogs. I had been reading about Chloe being sick but didn't have a chance to comment until now. I am glad that she is feeling much better. Have fun at the Hockey game!!!

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  2. Its always great to go out with your other kids. Life can be so consumed by our sick kids that the siblings get left out. Have fun.

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